Gene Edited Babies

Gene Edited Babies

by Deleted user -
Number of replies: 5

Though I have no personal experience, I feel like most researchers carry out experiments especially on grandiose levels such as Jankui’s experiment because the research is something that they are extremely passionate about and adamant on seeing through. As someone who is seemingly intelligent enough to essentially create HIV immunity in these twin babies, I definitely think Jankui was aware of how unethical his experiment would be seen in the science community and elsewhere. Though Jankui was not technically breaking any rules, his experiment is unethical because these babies are now the product of an experiment with unforeseen side effects that could cause serious harm. I’m not sure how they handle situations like this in accordance with China’s government, but I do think the parents’ of the babies should also decide if they want to press charges or not if complications do occur. Although a situation with a lot of gray area, I do think that Jankui’s had good intentions and he carried out the experiment because it was something he was passionate about. 

Several other cases of unethical experimentation have been seen throughout history. A well known example is the “Tuskegee Study of Untreated Syphilis in the Negro Male.” A large number of African-American males became participants in a study that promised free medical exams, meals, and burial insurance in exchange for their participation. However, these men did not receive any treatment at all and it was later acknowledged that the study’s objective was to see how syphilis escalated in the absence of treatment. I do not think Jankui’s experiment should be compared to unethical experiments such as the Tuskegee experiment and others alike because like I said before, Jankui didn’t technically break any rules or force anyone to be a part of his experiment. If these babies are immune, I think that’s an exciting development. However, my only concern is that they are at high risk of damaging side effects. Honestly, I think China may get a bad rap for such experimentation especially in the midst of what we're going through right now. But thought it might not have been on the best terms, if the babies have no complications, I think it's an advancement that the scientific community can appreciate. 


NormileNov, D., HeidtApr, A., HeidtApr, A., Ortega, R. P., HeidtApr, A., & BrainardApr, J. (2018, November 27). CRISPR bombshell: Chinese researcher claims to have created gene-edited twins. Retrieved from https://www.sciencemag.org/news/2018/11/crispr-bombshell-chinese-researcher-claims-have-created-gene-edited-twins

Li, J.-R., Walker, S., Nie, J.-B., & Zhang, X.-Q. (2019). Experiments that led to the first gene-edited babies: the ethical failings and the urgent need for better governance. Retrieved from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6331330/ 

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In reply to Deleted user

Re: Gene Edited Babies

by Deleted user -
Hey Ansleigh, I also agree that the reason he did this experiment was because he was passionate about it and he didn’t really think about it being ethical or not. I totally agree with what you are saying about the unforeseen side effects that the babies are now going to have. I believe that he should pay for all the medical bills that might happen if they have negative side effects to this experiment. I also agree with your statement on how you can’t compare this experiment to the Tuskegee experiment because the Tuskegee experiment was over the top unethical.

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In reply to Deleted user

Re: Gene Edited Babies

by Deleted user -
Hi Ansleigh!
I definitely agree Jiankui has to be an extremely smart and passionate individual to carry out experiments as such. I also agree he probably knew the ethical discrepancies of his work. I also agree it is the parents of the twins have major sway over the ultimate decision to pursue a legal battle with Jiankui. I found the information about the Tuskegee Syphilis Experiment extremely fascinating! If an experiment came with burial insurance, I think I may have to give my participation a second thought. In the end, the health of the babies is the most important part of this whole debacle.

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In reply to Deleted user

Re: Gene Edited Babies

by Deleted user -
Hi Ansleigh!
I agree with you that Jankui is smart and very passionate about his experiment. I think he had good intentions by trying to create immunity to HIV. I think that some of the unforeseen side effects of this experiment may cause some complications which were not mentioned in the document that the participants signed. I agree that this experiment should not be compared to the Tuskegee experiment because I think that they are completely different. I think that Jankui came from a place of wanting to help and being passionate about his cause while in the Tuskegee experiment, the participants were completely lied to and deceived. I do think that the side effects should definitely be addressed, and if this experiment is successful than it is going to be a big advancement to the scientific community.

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In reply to Deleted user

Re: Gene Edited Babies

by Deleted user -
Hey Ansleigh. I really like how you brought up the current situation that we are in, I never thought about that. I think with all of the controversy surrounding China with the coronavirus at the moment, I do agree that this may give them a bad rap or even escalate the current controversy going on. I also like how you bring up in the event that the twins do not experience complications, it may be something worth considering in future science. I automatically started thinking about the unethical things that could go wrong with the twins and never even thought of what if there are no complications. If there are no complications, this is definitely something that I think the science world of medicine should look into researching further and even using.

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In reply to Deleted user

Re: Gene Edited Babies

by Deleted user -
Hello! I can also see how this could be something that he was really passionate about. But, I think that even if he thought that he was doing this for all the right reasons, there are still so many problems with taking such large steps in a secret way. I think that speaks to his hubris and the fame he was seeking. Yes I also agree that it was unethical because the gene editing effects not only the twins but their babies and their babies babies because he altered the germ line. I think that this could have been done slowly and with state regulation before growing embryos that would be effected with the results forever.

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