forum 6

forum 6

by Deleted user -
Number of replies: 1

I am sure there are several reasons for He Jankui going through with his experiment to first successful alter genes of a pair of twin babies, despite it being considered unethical by many. He probably went through with the experiment to be the first person to do and illustrate to the world it can be successful done to alter genes of an Embryo. Part of it is he wants to help people in general by getting rid of genes that lead to harmful diseases, in this case the gene for HIV. However, many people in the community disagree with his actions because it is not medically justified. “The underlying purpose of doing the experiment was obviously to show that they could do gene editing on an embryo, but the purpose for the party involved does not make any sense,” says Anthony Fauci, an HIV/AIDS researcher, “There are so many ways to adequately, efficiently, and definitively protect yourself against HIV that the thought of editing the genes of an embryo to get to an effect that you could easily do in so many other ways in my mind is unethical.” Overall, by Jankui caring through with the experiment her has risked the lives of innocent, healthy twins. There is no way of knowing if his alterations will cause long- term effects in the twins. The Chinese government is handling it probably the best way possibly by sending him to prison for several years. By doing so, hopefully this sets a standard to help prevent people from endangering people’s lives just for answers.  

Unfortunately, unethical medical/ science experiments have always been a problem, because at the end of the day people want answers even if they hurt innocent people. J. Marion Sims, the father of gynecology, performed a serious of horrifying surgeries on slave women. He did not offer anesthesia, a choice to have the surgery, and often permanently ruined women who were later rejected by society. This situation is similar to Jankui’s because both did not offer consent to their patients and had potential to seriously injure their patients.  

One effect this might have on the relationship between the public and the medical community is that it could result in a lack of trust from the public. It illustrates that some scientists are willing to go against the safety and best interests of their patients. Jankui’s experiment has led to lots of curiosityUC Berkeley conducted a study and now people are even more interested in alternating the genes of embryosSo, it is possible more gene- alternated babies will be in our future.  

 

Pappas, S. (2018, June 29). 9 Absolutely Evil Medical Experiments. Retrieved from https://www.livescience.com/13002-7-absolutely-evil-medical-experiments-tuskegee-syphilis.html 

 

Li, J. (2019). Experiments that led to the first gene-edited babies: the ethical failings and the urgent need for better governance. J Zhejiang Univ Sci B. 20(1): 32-38. Retrieved from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6331330 
 

Normile, D. (2018). CRISPR bombshell: Chinese researcher claims to have created gene-edited twins. Science mag. Retrieved from https://www.sciencemag.org/news/2018/11/crispr-bombshell-chinese-researcher-claims-have-created-gene-edited-twins 


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In reply to Deleted user

Re: forum 6

by Deleted user -
Hi Carol! I enjoyed reading your post. I agree with your analysis of the ethics of the situation--putting babies at risk without the possibility of significant benefit to them is completely unjustified. I also agree with you that the interest in designer babies is increasingly an ethical concern in our society, which seems somewhat worrying. How do we determine what is and isn't a "genetic defect" to be fixed? Obviously severe health problems that can lead to death are the first things to target, but what about conditions such as Down Syndrome?
What J. Marion Sims did was disgusting and horrible, and highlights the critical importance of treating everyone with human dignity and not labeling anyone as sub-human because he or she is different. I was horrified to find that his portrait was only recently removed from a prominent medical school.

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